Monday, January 30, 2012
Jan 30
Still in the hospital unfortunately... She has been running fevers still. Her white blood cells are at .51 and need to get to 1 for her to come home and to have to fevers for 24 hours. So it's just more sitting and waiting. Trying to keep her positive!
Wednesday, January 25, 2012
Jan 25
Sorry for not writing in a while... things have been busy around here. My mom went back to the hospital on Friday for some blood work. Unfortunately, during that time she had a slight fever, so they decided to keep her there. She has been there since :( It's hard because she wants to be home. Ever since then she has been running fevers. They don't know what the cause is but they keep trying different general antibiotics to fight off whatever it might be. She won't be able to leave until her while blood cells go up high enough that her body can fight on its own. We need your prayers...PLEASE pray that her white blood cells go up so that she can spend some time at home before the transplant. Her spirits are good and she is talking and moving around normally thankfully, but she really wants to get out of the hospital!
We don't have much news on the transplant yet. They are thinking it will be around the second or third week of February. We have been in touch with a boy who had the same thing as my mom and had a transplant 3 months ago. He had slight issues with the transplant (from his body rejecting the donor's cells) but overall he is doing good. He also was treated at Dana Farber. He is only 21 and is so positive. It has been a blessing to be in contact with him. Please keep him in your prayers also! We hope to meet him soon!
We don't have much news on the transplant yet. They are thinking it will be around the second or third week of February. We have been in touch with a boy who had the same thing as my mom and had a transplant 3 months ago. He had slight issues with the transplant (from his body rejecting the donor's cells) but overall he is doing good. He also was treated at Dana Farber. He is only 21 and is so positive. It has been a blessing to be in contact with him. Please keep him in your prayers also! We hope to meet him soon!
Tuesday, January 17, 2012
Jan 17
All things work together for good to those who love God, to those who are the called according to His purpose.
Romans 8:28
My mom is on her way home finally! She is feeling a little better today. We will hope for no fevers and a peaceful few weeks at home before the transplant. She will have to go in at some point for scans to make sure she is in remission before that. Please pray that all of the cancer is gone so that they can do the transplant! She has gotten through one chapter of this. Now the next one will begin. Thank you all for your support and prayers! We know God is hearing them!!
Romans 8:28
My mom is on her way home finally! She is feeling a little better today. We will hope for no fevers and a peaceful few weeks at home before the transplant. She will have to go in at some point for scans to make sure she is in remission before that. Please pray that all of the cancer is gone so that they can do the transplant! She has gotten through one chapter of this. Now the next one will begin. Thank you all for your support and prayers! We know God is hearing them!!
Sunday, January 15, 2012
Jan 15
Not much to update you all on today. My mom is still pretty miserable. We went to Boston for Emily's birthday today and she was barely talking because she is still really nauseous. Hopefully she will improve tomorrow. She has her last chemo at 5am. Once she has recovered she can come home. But we have learned from last time that we won't have her discharged unless she is able to eat and stay hydrated. It's not worth the risk otherwise.
Saturday, January 14, 2012
Jan 14
Hi everyone, my mom is still at the hospital. She got chemo this morning but will have a break for 24 hours. Yesterday was rough though. She was very nauseous and her face was extremely swollen from all the fluids. I went to the hospital yesterday. My dad has been staying with her every night. Emily will be going today. Maybe if my mom is feeling ok my dad can come home and shower/rest. He said she is feeling a little better today, so that's good news!
This past week I have been in contact with some people who have experience with the same kind of lymphoma as my mom. We have heard some really encouraging stories! I am so grateful for others' experiences and their willingness to share their stories. Since this type of lymphoma has really only very recently been recognized, it's difficult to find others who have been through or are going through the same thing. Once we are through this I know our family will reach out to others to provide encouragement!
We now know the donor is a 22 year old female. That is all we will know for at least a year though. Please pray for my mom's transplant AND for her donor, who has decided to selflessly donate her stem cells!
God presents himself every day in our lives. From putting me in touch with others who are going through the same thing to sending us little messages when we are feeling down, He is with us!
This past week I have been in contact with some people who have experience with the same kind of lymphoma as my mom. We have heard some really encouraging stories! I am so grateful for others' experiences and their willingness to share their stories. Since this type of lymphoma has really only very recently been recognized, it's difficult to find others who have been through or are going through the same thing. Once we are through this I know our family will reach out to others to provide encouragement!
We now know the donor is a 22 year old female. That is all we will know for at least a year though. Please pray for my mom's transplant AND for her donor, who has decided to selflessly donate her stem cells!
God presents himself every day in our lives. From putting me in touch with others who are going through the same thing to sending us little messages when we are feeling down, He is with us!
Wednesday, January 11, 2012
Jan 11
Hi everyone, my mom just started chemo even though her platelets are still low. I guess they aren't too concerned and would rather get the chemo moving along. Please pray that this last treatment goes smoothly and that she isn't in too much pain. It is a 5 day inpatient treatment. So she will be there for at least 5 days. I will keep you updated.
Tuesday, January 10, 2012
Jan 10
Quick update: my mom will be going in some time tomorrow. She's feeling good lately though and has more energy. I will keep you all updated!
Sunday, January 8, 2012
Jan 8
Do not be afraid. Stand firm and you will see the deliverance the Lord will bring you today. The Lord will fight for you; you need only to be still.
Exodus 14:13-14
Hello everyone! For those who don't know, my mom ended up being sent home the day after checking in at the hospital because her platelets were too low to begin chemo. Her oncologist wants her to go get her blood checked tomorrow morning to see if her platelets have increased and then will schedule when to have her come in. Most likely they will admit her tomorrow. Even if her platelets are still too low he said they will begin chemo because they are not too worried about her bone marrow since she will be having a transplant. He told us they do have a donor for her who has 11 out of 12 matched traits. He said the unmatched trait is not a critical one though. So that is good news. He also told us that even though she feels like she's had a horrible time with chemo, she is doing very well treatment-wise!
My mom is feeling really good. Over the past 3 days she has been able to go to lunch with my dad's aunt and uncle, go to Home Goods, and go for a walk! She gets pretty tired afterwards but that's expected with this chemo. We are glad she had the extra couple of days to gain more of her strength before the next chemo.
We also asked her doctor about the plans for the scans to see if she is in remission. He said she will have a bone marrow biopsy and a PET scan at the end of the month. Praying that it will all be gone! Then the transplant will take place sometime in early or mid-February.
I will keep you all updated when she begins her last round of chemo! Keep praying!
Exodus 14:13-14
Hello everyone! For those who don't know, my mom ended up being sent home the day after checking in at the hospital because her platelets were too low to begin chemo. Her oncologist wants her to go get her blood checked tomorrow morning to see if her platelets have increased and then will schedule when to have her come in. Most likely they will admit her tomorrow. Even if her platelets are still too low he said they will begin chemo because they are not too worried about her bone marrow since she will be having a transplant. He told us they do have a donor for her who has 11 out of 12 matched traits. He said the unmatched trait is not a critical one though. So that is good news. He also told us that even though she feels like she's had a horrible time with chemo, she is doing very well treatment-wise!
My mom is feeling really good. Over the past 3 days she has been able to go to lunch with my dad's aunt and uncle, go to Home Goods, and go for a walk! She gets pretty tired afterwards but that's expected with this chemo. We are glad she had the extra couple of days to gain more of her strength before the next chemo.
We also asked her doctor about the plans for the scans to see if she is in remission. He said she will have a bone marrow biopsy and a PET scan at the end of the month. Praying that it will all be gone! Then the transplant will take place sometime in early or mid-February.
I will keep you all updated when she begins her last round of chemo! Keep praying!
Tuesday, January 3, 2012
Jan 3
Hope everyone had a good holiday. We did! My mom started feeling much better a few days after Christmas, and it was wonderful to have her home!! The doctors want her back to the hospital tomorrow to start her last round of chemo. It's a 5 day inpatient treatment. So she is pretty bummed to have to be going back. We are trying to keep her thinking positively even though none of us can imagine what she is going through. Right when she is feeling better she will how to go through being sick again. However, it is almost over.
The doctor told my dad they do have a match for my mom, but we don't know any details or if it is a perfect match yet. I think we will find out tomorrow or the next day. I have been in touch with a wonderful and positive woman who lives in our town and had a bone marrow transplant for non hodgkins lymphoma about 2 months ago. She is so upbeat and positive! She told me she goes for mile walks outside and tries to stay active. That was uplifting to know she is able to go outside and is feeling pretty good. Her son was a donor for her because she did not have a match in the registry. My mom is going to email her today. Thanks to everyone for your support, especially during the holidays!
The doctor told my dad they do have a match for my mom, but we don't know any details or if it is a perfect match yet. I think we will find out tomorrow or the next day. I have been in touch with a wonderful and positive woman who lives in our town and had a bone marrow transplant for non hodgkins lymphoma about 2 months ago. She is so upbeat and positive! She told me she goes for mile walks outside and tries to stay active. That was uplifting to know she is able to go outside and is feeling pretty good. Her son was a donor for her because she did not have a match in the registry. My mom is going to email her today. Thanks to everyone for your support, especially during the holidays!
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