Thursday, December 22, 2011
Dec 22
Just wanted to let everyone know that my mom is coming home tonight!! She is waiting for one more medication and then will be discharged. So she will be home for Christmas! She is feeling the effects of the chemo today unfortunately-some mouth sores, tired, etc. but she is glad to be coming home where we can make her more comfortable :) Reminder that our bone marrow drives will be held tomorrow! Thanks to our family in NJ and NY who are holding drives today for her!
Monday, December 19, 2011
Dec 19
My mom is still in the hospital today... Just waiting for the headaches to go away. They are hoping the leak in the spinal fluid will heal on its own because doing a spinal patch to fix it is risky. Her oncologist said they plan to do chemo tomorrow or Wednesday. We are hoping tomorrow so that she has time to get home before Christmas. Either way, they said this chemo should be quick with few side effects, and she should be home for Christmas. The only reason they keep her here for it is so they can give her plenty of fluids so the chemo does not harm her kidneys. I am at the hospital giving my dad the day off. Emily is going to come sleep here tonight. My nana and dad will return tomorrow. My mom seems to be feeling quite a bit better today. She has been online looking at Pinterest! Thanks Ash! I will let you all know when she begins chemo. Keep praying!
Saturday, December 17, 2011
Dec 18
Rejoice in hope, be patient in tribulation, be constant in prayer.
Romans 12:12
Sorry I have not updated the blog in a while. My mom had been home since her last chemo treatment on Monday. However, we had to take her to the hospital yesterday because her neck and head pain had not subsided and felt worse. She began throwing up once she was there and finally stopped throwing up about 4 hours ago. The doctors think it is the migraine making her throw up. They did a CT scan and saw fluid around her brain. They had worries it might be some kind of infection, but it could also be from the chemo they injected into her spine causing a spinal fluid leak. Just in case it is an infection, they have hooked her up to antibiotics. Her pain is finally under control and she is sleeping.
We don't know how this will affect her next chemo treatment, but we are hoping they will postpone it until next Monday so she can be home for Christmas. Picturing Christmas without her being there is painful for all of us. Chemo is supposed to begin this Monday and it will be 2 to 4 days in the hospital. Please pray she will be home for Christmas! Thanksgiving without her was hard enough... I don't know how we will get through it!
My Nana is here again helping out with things. My aunt Debi will be coming on Christmas Eve. Bobby and Cory are coming christmas day. Hopefully having others around will help! Special thanks to my Poppop, my mom's dad for visiting last week and decorating our house for Christmas! it helped lift all our spirits.
I will try and keep the blog updated more now with upcoming treatments. Thanks to everyone!
Romans 12:12
Sorry I have not updated the blog in a while. My mom had been home since her last chemo treatment on Monday. However, we had to take her to the hospital yesterday because her neck and head pain had not subsided and felt worse. She began throwing up once she was there and finally stopped throwing up about 4 hours ago. The doctors think it is the migraine making her throw up. They did a CT scan and saw fluid around her brain. They had worries it might be some kind of infection, but it could also be from the chemo they injected into her spine causing a spinal fluid leak. Just in case it is an infection, they have hooked her up to antibiotics. Her pain is finally under control and she is sleeping.
We don't know how this will affect her next chemo treatment, but we are hoping they will postpone it until next Monday so she can be home for Christmas. Picturing Christmas without her being there is painful for all of us. Chemo is supposed to begin this Monday and it will be 2 to 4 days in the hospital. Please pray she will be home for Christmas! Thanksgiving without her was hard enough... I don't know how we will get through it!
My Nana is here again helping out with things. My aunt Debi will be coming on Christmas Eve. Bobby and Cory are coming christmas day. Hopefully having others around will help! Special thanks to my Poppop, my mom's dad for visiting last week and decorating our house for Christmas! it helped lift all our spirits.
I will try and keep the blog updated more now with upcoming treatments. Thanks to everyone!
Thursday, December 8, 2011
Dec 8
"Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything." - James 1:2-4
My mom met with the bone marrow doctor yesterday. He was really positive. Basically he said the transplant is something that the doctors can't say 100% yes she should do it. However, with her type of lymphoma, it often relapses after people achieve remission. So, they believe her best shot at getting rid of it forever is to have the transplant after she finishes chemo. He said they have had good results by doing it this way and not waiting until the cancer relapses because then it becomes harder to treat.
They do have potential matches in the registry for her, which is great news. Now we are just hoping that at least one will be a perfect match and that the donors are still willing to give their cells. We definitely will still be doing the bone marrow drives because we want to make sure that other people can find matches as well and add as many people as possible to the registry. Over 10,000 people need a transplant and only half will get one. This number includes babies, children and adults. The next steps of them determining matches will be to have their potential matches come in and have a blood test done to see if they have at least 7 out of 8 things that match my mom's tissue. 8/8 would be the best case scenario.
My mom is beginning chemo again today. She is actually almost done. My dad just told me that her oncologist said they are very pleased with how she is doing and her LDH is back to normal, which is a good sign. This is the outpatient part, and she will be coming home once she is done and returning tomorrow, Sunday (for a white blood cell shot), and then again on Monday. We will be praying that she does not get a fever and can remain at home until her next treatment, which is on December 19th. That treatment is only supposed to be 2 days inpatient and we are REALLY HOPING she will be home by Christmas. But we know the most important thing is that she get the chemo and get rid of the lymphoma! Either way, we will be together on Christmas.
God is truly present in our lives each day, from the amazing people we meet to the small signs He gives us. We feel Him acting all the time! He is keeping us all strong, and I know there is a purpose for all of this. We will persevere!!
My mom met with the bone marrow doctor yesterday. He was really positive. Basically he said the transplant is something that the doctors can't say 100% yes she should do it. However, with her type of lymphoma, it often relapses after people achieve remission. So, they believe her best shot at getting rid of it forever is to have the transplant after she finishes chemo. He said they have had good results by doing it this way and not waiting until the cancer relapses because then it becomes harder to treat.
They do have potential matches in the registry for her, which is great news. Now we are just hoping that at least one will be a perfect match and that the donors are still willing to give their cells. We definitely will still be doing the bone marrow drives because we want to make sure that other people can find matches as well and add as many people as possible to the registry. Over 10,000 people need a transplant and only half will get one. This number includes babies, children and adults. The next steps of them determining matches will be to have their potential matches come in and have a blood test done to see if they have at least 7 out of 8 things that match my mom's tissue. 8/8 would be the best case scenario.
My mom is beginning chemo again today. She is actually almost done. My dad just told me that her oncologist said they are very pleased with how she is doing and her LDH is back to normal, which is a good sign. This is the outpatient part, and she will be coming home once she is done and returning tomorrow, Sunday (for a white blood cell shot), and then again on Monday. We will be praying that she does not get a fever and can remain at home until her next treatment, which is on December 19th. That treatment is only supposed to be 2 days inpatient and we are REALLY HOPING she will be home by Christmas. But we know the most important thing is that she get the chemo and get rid of the lymphoma! Either way, we will be together on Christmas.
God is truly present in our lives each day, from the amazing people we meet to the small signs He gives us. We feel Him acting all the time! He is keeping us all strong, and I know there is a purpose for all of this. We will persevere!!
Sunday, December 4, 2011
Dec 4
Hello everyone! My mom is doing great and enjoying being home. We are currently in the process of organizing a bone marrow transplant drive in honor of her. We are hoping to make it BIG and to get hundreds of people to join the registry in order to find her and others a bone marrow match! I was contacted by a man named Michael Guglielmo, who spent time in prison but now dedicates his life to finding people bone marrow matches. What a blessing that he lives so close to us! He became passionate about finding bone marrow matches after his own son needed a match at the age of 6 months. Since then he has added thousands of people to the registry within the past 5 years. I am so inspired by him!
We are going to be meeting with him one day this week hopefully to get this drive going. We will be needing volunteers to attend the meeting this week and then to help with things such as logistics and publicity. Publicity is most important and I know that each of you will be able to help us with that. So please start spreading the word to your coworkers, friends and family about this bone marrow drive. It only takes 10 minutes to join the registry and involves only a cheek swab.
If you are not in NH, please join the registry online and they will send a kit to you in the mail. You could be the match for my mom or another person in need! It is the most amazing gift you could give someone! The website to do so is: http://marrow.org/Join/Join_Now/Join_Now.aspx
If you feel like you want to help in an even bigger way, you can organize your own bone marrow drive in honor of my mom. People are much more likely to get tested if they see a face with the drive. The website to do this is: http://www.dkmsamericas.org/recruit
I know that between everyone who reads this and everyone each of you knows, we have the potential to make this big! Our whole family is so thankful to be able to be proactive in this process, and my mom really wants to be able to make a difference in others' lives in this process. So please take a few moments to help spread the word and join the registry!
*Please let us know if you are interested in volunteering at the drive and attending the meeting this week so Emily and I know if we have enough volunteers!
We are going to be meeting with him one day this week hopefully to get this drive going. We will be needing volunteers to attend the meeting this week and then to help with things such as logistics and publicity. Publicity is most important and I know that each of you will be able to help us with that. So please start spreading the word to your coworkers, friends and family about this bone marrow drive. It only takes 10 minutes to join the registry and involves only a cheek swab.
If you are not in NH, please join the registry online and they will send a kit to you in the mail. You could be the match for my mom or another person in need! It is the most amazing gift you could give someone! The website to do so is: http://marrow.org/Join/Join_Now/Join_Now.aspx
If you feel like you want to help in an even bigger way, you can organize your own bone marrow drive in honor of my mom. People are much more likely to get tested if they see a face with the drive. The website to do this is: http://www.dkmsamericas.org/recruit
I know that between everyone who reads this and everyone each of you knows, we have the potential to make this big! Our whole family is so thankful to be able to be proactive in this process, and my mom really wants to be able to make a difference in others' lives in this process. So please take a few moments to help spread the word and join the registry!
*Please let us know if you are interested in volunteering at the drive and attending the meeting this week so Emily and I know if we have enough volunteers!
Friday, December 2, 2011
Dec 2
Commit your way to the LORD; trust in him, and he will act.
Psalm 37:5
Just thought everyone would like to know my mom is back home!! She is doing so well. I am back in CO until Tuesday, but will be done for good after that! I called my house this morning and my mom answered. She sounds amazing! She also got a wig yesterday, and I got to see pictures. It looks beautiful and just like her hair before chemo. My mom's dad is there now and has been decorating the house for Christmas all day :). Dani stayed home from school to hang out with my mom also. They are working on feeding my mom so she puts some of the weight she has lost back on. Aunt Wendy went back to NJ. What would we do without her?! Thank you to everyone for the continued support, flowers, cards, gas cards, food and everything else! It has been so helpful!!!
We are not sure when the next treatment will be, possibly end of next week or beginning of the week after. However, that cycle is supposed to be outpatient, and hopefully it will stay that way. So until then she will be relaxing and regaining her strength!
Psalm 37:5
Just thought everyone would like to know my mom is back home!! She is doing so well. I am back in CO until Tuesday, but will be done for good after that! I called my house this morning and my mom answered. She sounds amazing! She also got a wig yesterday, and I got to see pictures. It looks beautiful and just like her hair before chemo. My mom's dad is there now and has been decorating the house for Christmas all day :). Dani stayed home from school to hang out with my mom also. They are working on feeding my mom so she puts some of the weight she has lost back on. Aunt Wendy went back to NJ. What would we do without her?! Thank you to everyone for the continued support, flowers, cards, gas cards, food and everything else! It has been so helpful!!!
We are not sure when the next treatment will be, possibly end of next week or beginning of the week after. However, that cycle is supposed to be outpatient, and hopefully it will stay that way. So until then she will be relaxing and regaining her strength!
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